We all know that our VCFS kids are pretty special people!! This is especially true when you are visiting the doctor. Did you know that there are some specific lab tests that we should be making sure are done every year?
This link has a great chart that you could print out and take to your doctor at your next appointment.
Welcome
My name is Sherri. My husband Matt and I are so proud of our 2 great kids who joined our family through the blessing of adoption.
Micayla is our oldest and she has DiGeorge Syndrome. She was diagnosed before birth. She had her first heart surgery at 9 days old. It's been rough at times but she is doing great!!
I created this blog as a place where families dealing with VCFS can link together to share our trials, triumphs, fears and dreams.
Along the left hand side here you will see a list of families/kids that are dealing with VCFS, if you would like to be linked there please comment with your link or email sherriwj@msn.com If there is something that you would like to post please let me know.
Micayla is our oldest and she has DiGeorge Syndrome. She was diagnosed before birth. She had her first heart surgery at 9 days old. It's been rough at times but she is doing great!!
I created this blog as a place where families dealing with VCFS can link together to share our trials, triumphs, fears and dreams.
Along the left hand side here you will see a list of families/kids that are dealing with VCFS, if you would like to be linked there please comment with your link or email sherriwj@msn.com If there is something that you would like to post please let me know.
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1 comment:
Thank you for your blog! I am a 26 year old adult with VCFS with my own blog here in blogspot. I have had many troubles as a person with VCFS, but do love who I am and love being married and being a student of Technical Communication. My parents have also been wonderfully supportive of my endeavors and to keep my alive, healthy and going strong. I wasn't diagnosed until I was 12, so it was difficult for my parents. Anyway, thanks again and keep up the good work on spreading the word!
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