I received a comment on Micayla's Story from a sweet Grandma whose family is dealing with the loss of her 13 month old grandson.
Please visit her blog and remember them in your prayers.
Elijah's Legacy
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What is VCFS?
"VCFS is the second most common genetic disorder after Down syndrome, affecting one in 2000 people. One in three VCFS adolescents will develop a psychosis of some kind, many degenerating into schizophrenia." - VCFS Educational Foundation, Inc.
Dr Robert Shprintzen first diagnosed velo-cardio-facial syndrome, or VCFS, in 1978, but while one in 2000 people has it, VCFS remains relatively unknown. Most children born with the syndrome have heart and palate defects, distinctive facial appearance and learning difficulties.
Dr Robert Shprintzen first diagnosed velo-cardio-facial syndrome, or VCFS, in 1978, but while one in 2000 people has it, VCFS remains relatively unknown. Most children born with the syndrome have heart and palate defects, distinctive facial appearance and learning difficulties.
2 comments:
Thank you for posting about me on your site! I hope that I can help families through my thoughts and experiences. Thanks also for your comment on my recent blog, I agree 100% that God has a plan for us and that we need to see the opportunity in everything. Merry Christmas to you and your family!
Thank you for your comments, I agree 100%. Have a Merry Christmas and thank you for posting my blog on your site! I hope that my thoughts can help families.
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