Roll Call!

How is everyone doing???

I was wondering if your kids will be getting the H1N1 Vaccine....

Pass It On --- and an update......

I finished reading Quinn Bradley's book a while back and I keep forgetting to ask if anyone else wants to read it. I will be happy to pass it on..... Let me know.

One thing is for sure - I actually became a little more worried about Micayla's educational future when I read this book. I actually saw Micayla a lot in his story. Combine that with a few issues we had with her school in her kindergarten year, and withmy belief that at some point she will become lost in the public school system we have decided to homeschool her.

She got into th Utah Virtual Academy. It's an online charter school with a great cirriculum. We are all really excited. We will be able to learn together at a pace that she is comfortable with.

Last week she had her annual echo. I hate those things! I try not to look at the screen because even though I have no idea what anything means I always feel like something is wrong. We I WAS WRONG. Everything was great! It's so weird having a Dr. that is great at what he does and has all that education tell you how much of a miracle you child is. Well anyway, we are set for another year.

Quinn Bradlee on CNN today

Quinn Bradlee's Book

Quinn Bradlee, who has VCFS, just wrote a memoir for us called A Different Life: Growing Up Learning Disabled and Other Adventures. He’s been getting a lot of press in the US for his book, and website that he just launched, www.friendsofquinn.com.

Quinn will also be making the following public appearances:

4/9 PBS News Hour with Jim Lehrer

4/13 NPR “The Diane Rehm Show”

4/14 ABC Radio “Imus in the Morning”

4/21 ABC “The View”

4/23 Politics & Prose Bookstore ( Washington DC ) 7 pm

A family that needs our support

I received a comment on Micayla's Story from a sweet Grandma whose family is dealing with the loss of her 13 month old grandson.

Please visit her blog and remember them in your prayers.

Elijah's Legacy

Lindsay----

Lindsay I am sorry that I didn't respond to your comment sooner!! I am so glad that you found us!

I think that Lindsay can be a great help to us with kids with VCFS. Lindsay is an adult living with VCFS. She is married and a senior in college!

What to ask for at your child's well-check appointments.

We all know that our VCFS kids are pretty special people!! This is especially true when you are visiting the doctor. Did you know that there are some specific lab tests that we should be making sure are done every year?

This link has a great chart that you could print out and take to your doctor at your next appointment.